Heading To Houston

Hello everyone. We had an amazing trip to Lafayette and New Orleans over the Fourth of July holiday. It was great to see my family and so many friends. When we returned to Orlando I had a follow-up appointment with Dr. Nick which showed that the past chemo treatment has not been entirely successful. The original tumor has metastasized into the occipital lobe on the left side of my brain. Dr. Nick has suggested that I travel to M.D. Anderson in Houston to see if I can be accepted into a clinical trial. Cathy and I leave Sunday afternoon for three days of tests. Thank you for thinking about me. I really appreciate your thoughts, your love and your comments. I will keep you posted on my adventures in Houston.
Love, Ellen

Monday, July 13, 2009

Tomorrow morning, Ellen will have her next follow-up MRI. The last one was good...so let's all send some positive energy to Orlando, Florida to keep the positive news coming. We are all praying for you Ellen and clogging the airwaves with love. Love, Donna

Positive Energy update

A big thank you to everyone who participated, sent spiritual support, or even gifts to Cathy and me. We received positive news once again. The MRI showed no significant growth in my new tumor, and the original tumor is also stable. Needless to say we are expremely happy, and ready to attack the tumor with another chemotherapy agent. I will begin this new agent, called Vepesid or VP16 this week. The course of treatment calls for three weeks on and three weeks off in addition to the other two agents I receive now. I have been feeling extremely good! Enough, to enjoy a very relaxing trip to New Smyrna Beach. It was incredibly beautiful and relaxing. This next treatment might even include a course of radiation. The important thing is I feel so blessed to had made it to this point in the treatment. So thanks again to all of you, and especially Cathy and Donna who spearheaded the day of prayer and positive energy.
I love you all,
Ellen

May 27, 2009

Cathy and Ellen enjoying the view at "Lake Ellen".

The best remedy for those who are afraid,

lonely or unhappy is to go outside,

somewhere where they can be quiet, alone

with the heavens, nature and God.

Because only then does one feel that

all is as it should be and that

God wishes to see people happy,

amidst the simple beauty of nature.

--Anne Frank

I have been meaning to post this photo for a long time. I took the shot when I visited Ellen and Cathy back in November at a place they like to go for walking and sitting and just being. They appropriately named the body of water Lake Ellen and it makes me feel good whenever I look at the photo.

Cathy asked me to update everyone on the news from the past couple of weeks, so here goes. Two weeks ago Ellen's MRI showed that the tumor had grown back in two places. It is not unusual for this type of tumor, but it does mean that the current chemo combination she was on was not working and would have to be changed. The doctor felt the need to aggressively fight these new tumors with three types of chemo over a three week period. On Tuesday, June 2nd (at 7:45 a.m.) Ellen will receive another MRI to see if the tumors are responding to the treatments. This is where all her friends and family are needed. When she was in surgery, we all did a group prayer, did a meditation, lit a candle, looked at the sky, and sent loads of positive energy her way. She needs that again. So wherever you are on Monday evening, let's help her attack those tumors with all the energy we can muster! And send those positive thoughts...by telepathy, by e-mail and by phone!

We are with you Ellen (and Cathy)...sitting at Lake Ellen and enjoying the view.

Love, Donna

 

april 2009

Hello! Cathy here. Just wanted to give you all a bit of an update.
Ellen continues to do well. She had an MRI last week with results showing improvement in the area where the tumor was.
The little cancer bastards are running like Hell! The two week schedule of chemo is difficult on her, fatigue, nausea and
loss of appetite seem to be the worst. She's getting a little skinny, but still looks pretty good to me.......

We are going to Louisiana the end of this month, me to do Jazzfest, Ellen for a visit with family in Lafayette. I am working
more in the studio, mostly to stay out of trouble, but I have been enjoying the process of creating again. I'm looking forward to seeing friends, selling art and eating White Chocolate Bread Pudding from my favorite vendor at the Fest.

Ellen is looking forward to spending time with family. We are looking at the possibility of moving to Lafayette during the
summer and so will be exploring the area for a place to live during this visit. I'd like a house with extra studio space and a large swimming pool, but so far I haven't been promised anything yet......I'll keep you all posted.

I want to thank everyone for continuing to call, or send cards, or send loving thoughts our way. You really have no idea
how much it helps, how much it keeps both of us in a positive place and how much we appreciate it. Our friends have
carried us when things have been the hardest and neither of us will ever forget that.

Till next time.
love
cathy

Hello!

Way too long since my last post. I am doing well. As some of you know we took a trip to Louisiana the weekend prior to Mardi Gras. It was terrific seeing my family, friends, and the beautiful landscapes that I have come to miss. Who would have known that a bayou has such mystic? Our friends, Susan and Sam, hosted a porch party at their home on Saturday afternoon. We sat on the front porch on St. Charles Avenue eating quiche, sipping mimosas, and eating strawberries dipped in some kind of fantastic liquor cream sauce. I really do miss New Orleans!

Anyway, we continue to hang in here. My treatments are still every two weeks, and for the most part I tolerate them fairly well. Cathy has been my rock! Thanks to all of you who keep us in your thoughts and prayers.

Love,
Ellen

2009--the best news

I have the best news to share with you! I saw my doctor today, and he told me that according to the MRI my tumor has shrunk. Cathy and I are so ecstatic. Thank you, thank you, and thank you for all your love and support. We would never have gotten here without your ending faith, hope, and prayers. I thank God too, because none of this is possible without his love and support. I still need to continue with the chemo. Anything is possible--thanks for this miracle.
Love,
Ellen